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Putting Up With POTS
A Blog About Life With Chronic Illness
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COVID Grief
When I was 10 my brother died. It was my first major grief process and unsurprisingly it has stuck with me through the years. One thing...
jdsantacrose
Nov 18, 20203 min read
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How I've Experienced Medical Sexism
Early in 2016 I found myself strapped to a table waiting to be tilted until I passed out. It sounds like a medieval torture device but it...
jdsantacrose
Aug 19, 20205 min read
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Chronically Ill People Are Not Disposable and Semantics Matter
I keep seeing this thing in medical discourse about risks, specifically risks of death. It’s phrased something like this: “most of the...
jdsantacrose
Aug 10, 20204 min read
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The Complex Psychological Impacts of Lockdown
In Pennsylvania, where I live, we have been on some version of a lockdown for the last 5 months or so. People have responded to these...
jdsantacrose
Jul 30, 20205 min read
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Why Is It So Hard To Stay Home?
Americans have, on the whole, been asked to stay home for the time being. The goal of this is to slow down the spread of the COVID-19...
jdsantacrose
Mar 19, 20203 min read
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Bored At Home? Here's Some Ideas Of What To Do
We have been asked to practice social distancing to try to “flatten the curve” of the COVID-19 virus. What this means for most of us...
jdsantacrose
Mar 18, 20206 min read
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This Is How Chronically Ill People Feel All The Time
COVID-19 was recently declared a pandemic by the World Health Organization (WHO) and many states and counties are limiting gatherings of...
jdsantacrose
Mar 11, 20203 min read
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Why I Don't Want To Be Exposed To Your Acute Illnesses
I’ve spent much of the last 8 years in 'the land of the sick.' 8 years ago is when I started having chronic illness symptoms that greatly...
jdsantacrose
Apr 25, 20194 min read
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