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Putting Up With POTS
A Blog About Life With Chronic Illness
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COVID Grief
When I was 10 my brother died. It was my first major grief process and unsurprisingly it has stuck with me through the years. One thing...
jdsantacrose
Nov 18, 20203 min read


Dynamic Disabilities
"A dynamic disability is a disability that tends to fluctuate in severity (pain, energy, etc…) in a difficult to predict manner. Those...
jdsantacrose
Sep 25, 20207 min read


How I've Experienced Medical Sexism
Early in 2016 I found myself strapped to a table waiting to be tilted until I passed out. It sounds like a medieval torture device but it...
jdsantacrose
Aug 19, 20205 min read


Chronically Ill People Are Not Disposable and Semantics Matter
I keep seeing this thing in medical discourse about risks, specifically risks of death. It’s phrased something like this: “most of the...
jdsantacrose
Aug 10, 20204 min read


The Complex Psychological Impacts of Lockdown
In Pennsylvania, where I live, we have been on some version of a lockdown for the last 5 months or so. People have responded to these...
jdsantacrose
Jul 30, 20205 min read


America Has a Pacing Problem Regarding COVID-19
One thing that chronic illness patients always have to learn is pacing. Eventually everyone has to learn pacing but the healthy can...
jdsantacrose
Jun 29, 20205 min read


It Turns Out My Therapist Was Right All Along
I’ve struggled with anxiety for my entire adult life. I’ve been in therapy for it (with the same therapist) for about 8 years now. Over...
jdsantacrose
Apr 18, 20203 min read


Why Is It So Hard To Stay Home?
Americans have, on the whole, been asked to stay home for the time being. The goal of this is to slow down the spread of the COVID-19...
jdsantacrose
Mar 19, 20203 min read


Bored At Home? Here's Some Ideas Of What To Do
We have been asked to practice social distancing to try to “flatten the curve” of the COVID-19 virus. What this means for most of us...
jdsantacrose
Mar 18, 20206 min read


This Is How Chronically Ill People Feel All The Time
COVID-19 was recently declared a pandemic by the World Health Organization (WHO) and many states and counties are limiting gatherings of...
jdsantacrose
Mar 11, 20203 min read


In The Kingdom Of The Sick
In The Kingdom Of The Sick by Laurie Edwards (2013) is a social history of chronic illness. Edwards explores both historical and modern...
jdsantacrose
Mar 7, 20202 min read


Sometimes We Face Setbacks
Setbacks can be incredibly frustrating. Everyone has experienced a setback of some sort in their lives. Sometimes it’s a lost job, or an...
jdsantacrose
Jan 15, 20203 min read


The Stages of Chronic Illness
1. The Weird Symptom Stage. You have weird symptoms but you don’t know yet that what you are experiencing isn’t normal. For me this stage...
jdsantacrose
Jan 15, 20202 min read


Being In Nature Is Good For You-Even In Winter
Many of us have heard that we should get out in nature more, whether from doctors, therapists, or just a concerned friend. This advice is...
jdsantacrose
Dec 10, 20193 min read


Weird Tricks That Have Helped With My Medical Problems
I wanted to write about some of the weirder things that have actually helped a lot with some of my medical problems. We are all bombarded...
jdsantacrose
Nov 13, 20192 min read


When Depression Kills My Motivation
I have a kind of depression called Dysthymia or Persistent Depressive Disorder. It’s a kind of depression that has less of the ups and...
jdsantacrose
Nov 13, 20193 min read


Music Has Helped Me Through Dark Times
I’m a big fan of music. My family always had music on in the background when I was growing up. As an adult I have used music over and...
jdsantacrose
Oct 24, 20191 min read


10 Activities To Do With Good Posture
Approximately 10% of adults at any given time are experiencing neck pain. I have personally had neck pain for about 3 years now, since a...
jdsantacrose
Sep 22, 20193 min read


When My Mental Health Tanks
I’ve been in a bit of a weird place lately when it comes to mental health. For those inclined to worry about me-don’t worry, I’m fine....
jdsantacrose
Sep 22, 20194 min read


Illness Friendly Activities
Living with chronic illnesses can make it hard to find activities that both you and the people around you can enjoy. It can be hard to...
jdsantacrose
Sep 4, 20194 min read
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