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Putting Up With POTS
A Blog About Life With Chronic Illness
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Extreme Lifestyle Adjustments For POTS Flares
I’ve spent the better part of the last 4 months in the worst POTS flare I’ve ever had. Because of that I’ve had to find a lot of new and...
jdsantacrose
Mar 27, 20225 min read


How I've Been Reframing My Thoughts During A Flare
I suspect my counselor has been quietly helping me to reframe things for years now, but I’ve only recently started to get good at it...
jdsantacrose
Mar 17, 20224 min read


My POTS And Anxiety Play Into Each Other
I have a solid handful of chronic health conditions. Most of these are treated by individual specialists. A cardiologist treats my POTS,...
jdsantacrose
Feb 23, 20223 min read


Ways To Make Cooking Easier With Chronic Illness
Chronic Illnesses are sometimes referred to as dynamic disabilities, meaning that the level of disability can change significantly over...
jdsantacrose
Feb 14, 20223 min read


What My Anxiety Feels Like
I’ve written about depression much more often on this blog than I have anxiety. I think that’s because my anxiety has always felt more...
jdsantacrose
Nov 27, 20213 min read


An Update On Magnets!
I announced in my previous post that I was going to be trying a new (to me) depression treatment called TMS or Transcranial Magnetic...
jdsantacrose
Oct 17, 20213 min read


I'm Trying A New Depression Treatment
I’ve been depressed for most of my life. Pretty much all of my remembered life. I have been in therapy for 9 years now, with a therapist...
jdsantacrose
Sep 1, 20212 min read


The Importance of Both Acceptance and Hope
Life with chronic illnesses can be brutal sometimes. When your illness is incurable you have to balance acceptance of your current...
jdsantacrose
Jul 22, 20213 min read


IBS and a Low FODMAP Diet
When I was 22 I started having debilitating digestive symptoms. I went to several doctors and eventually we ruled out everything else,...
jdsantacrose
Jul 10, 20215 min read


Some Thoughts on Grief
In some ways I feel like grief has been my constant companion through life. Which is not to say that I have had a bad life, but grief is...
jdsantacrose
Jun 12, 20213 min read


Permaculture Gardening Helps Me Garden
I’ve spent the last 6 years trying to figure out how to continue gardening despite my chronic illness struggles. I’ve had to make...
jdsantacrose
Apr 18, 20214 min read


Gardening With Chronic Illness
Gardening was one of my favorite activities before I became chronically ill. It has been a long journey but over the last decade or so I...
jdsantacrose
Feb 22, 20216 min read


Strategies For The Winter Blues
I went into this winter already in a pretty deep depression. That combined with the realities of COVID have made this winter a difficult...
jdsantacrose
Feb 14, 20214 min read


How Osteopathic Manipulative Therapy Has Helped Me
One of the conditions I tend to talk about less on this blog is hypermobility spectrum disorder. Put in the most basic terms, the...
jdsantacrose
Feb 11, 20213 min read


Things I Wish I'd Known When Newly Diagnosed With POTS Part 2
In my first post I talked about the need to keep searching for the right doctors, compression gear, online support groups, realistic...
jdsantacrose
Feb 6, 20217 min read


Things I Wish I'd Known When Newly Diagnosed With POTS Part 1
When I was diagnosed with POTS in 2016 (after 14 years of symptoms) I didn’t know anyone else that had POTS. It felt extra scary to think...
jdsantacrose
Feb 3, 20219 min read


When Depression Makes It So I'm Just Surviving
Some days are pretty hard with depression. I’ve had depression for at least 20 years so I’m not new to this game. I can live through a...
jdsantacrose
Jan 30, 20212 min read


Could Do List: A Depression Coping Mechanism
One day last fall my husband was being insufferable and went on a long rant about how To Do lists are useless. He was reading a book...
jdsantacrose
Jan 27, 20213 min read


The Best 2 Player Board Games
Board games are a great way to pass some time while stuck at home. It’s inadvisable to have friends over for board game nights right now....
jdsantacrose
Jan 23, 20215 min read


Finding Meaningful Connection in a Time of COVID
This year has been a strange one for all of us. Family and social connections in particular have been missed due to the pandemic....
jdsantacrose
Jan 13, 20214 min read
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